Approximately three weeks ago, a milestone was hit for the Cystic Fibrosis community.  If you are unaware, Cystic Fibrosis is a life-threatening genetic disease that affects and damages the lungs and digestive system.  Just recently, the FDA approved the release of a drug that can treat the majority of Cystic Fibrosis patients.  The drug is called Trikafta and can manage and treat symptoms of the disease for patients with the most common CF mutation.  Trikafta is a combination of three drugs, which helps the defective protein in CF patients function more effectively.  I am extremely excited and overjoyed that the FDA has finally approved this drug.  I have three cousins that have lost their lives to Cystic Fibrosis.  This drug would have helped them. This breaks my heart that it was too late for them, but it excites me for those who can benefit from it.  My younger cousin, Bobby, also has Cystic Fibrosis.  This drug will help him significantly.  I cannot explain how happy and grateful my family is that this drug was approved. Just writing this brings tears to my eyes but also makes me smile bigger than ever. Cystic Fibrosis is no longer a death sentence.  I wanted to share this because it has been something on my mind the past few weeks and I am feeling grateful and proud of the medical community for discovering this drug.  Each year, I attend a walk for Cystic Fibrosis and go door to door raising money.  It makes me happy that the money that we have raised is making a difference.  I’m going to keep walking each year, raising money, and fighting until we find a cure, which we will. It’s not over yet!

One thought on “Milestone for the CF Community”

  1. This is, indeed, great news. I lost a friend to CF, and as you say, it’s sad that effective treatment is only beginning to be found, but gives wonderful hope for the future.

Leave a Reply

Your email address will not be published. Required fields are marked *